Welcome to the official blog of The Wellness Community Valley/Ventura, an affiliate of the Cancer Support Community! Thank you for stopping by. We’ll use this space to share fresh news, inspiring stories, helpful advice, upcoming events, and anything else we feel will help our readers engage with our cancer support organization and the cancer support community at large. Please keep your feedback coming, via comments, or send us an email.

Wednesday, June 8, 2011

The Wellness Community Kicks Off New Support Group With a Seminar on Advances in Lung Cancer Treatment


The Wellness Community Valley/Ventura kicks off a new lung cancer networking group with a free educational seminar led by a UCLA lung cancer physician. “Progress in the Management of Lung Cancer” presented by Edward Garon, MD, takes place on Tuesday, June 21 from 6:30 p.m. until 8:00 p.m. at 530 Hampshire Road, Westlake Village, CA 91361. The seminar and networking group are open to lung cancer patients, survivors and family members. The lung cancer networking group meets on the first and third Tuesday of each month at 6:30pm, beginning July 5, at the same address as the seminar. Psychotherapist Peggy Johnston, MFT will facilitate. Johnston has been a cancer support group facilitator at The Wellness Community for 11 years. The seminar and the group are both free, but registration is required. Call (805) 379-4777 to register or learn more.

In April, for the first time in four decades, the National Cancer Institute reported a decline in lung cancer deaths for women. The lung cancer death rate for men began to decrease in the early 1990s. In the seminar Dr. Garon will discuss additional encouraging trends in treatment, clinical trials, and management of side effects. Dr. Garon is a physician and researcher at the University of California, Los Angeles. He has been awarded a UCLA Lung SPORE Career Development Award in 2007, a Hirshberg Foundation for Pancreatic Cancer Research award in 2007, the Tower Cancer Research Foundation Career Development Award in 2008, and a Lincy Foundation Grant in 2008. His interests are in gastrointestinal, pancreatic and lung oncology. Dr. Garon sees patients and conducts clinical trials at his private practice in Santa Monica.


The seminar kicks off a new support group geared exclusively to lung cancer patients and survivors. The group will be led by a professional therapist and is free of charge.

Kathy Joosten, a ten-year lung cancer survivor and an Emmy Award-winning actress, encouraged The Wellness Community to form a group to address the specific needs of lung cancer patients and survivors. “I am delighted that they are forming this group because it is essential for lung cancer patients to find support from people who are undergoing the same kinds of fears, expenses, body changes, chemotherapy, and radiation,” says Joosten, who senses a “subtle agreement” among people, even patients themselves, to not talk about lung cancer as much as other types of cancer. She adds, “We need a place where people who have remained silent until now can come together and talk about the disease.” Joosten has starred on many hit television series including The West Wing and Desperate Housewives.

Free Seminar Will Present New Advances in Prostate Cancer Treatment


Dr. Robert Princenthal will present “Advances in Prostate MRI, Detection and Staging” on Saturday, June 18 from 10:30 a.m. to 12:30 p.m. at The Wellness Community Valley/Ventura, 530 Hampshire Road, Westlake Village, CA 91361. This seminar is part of The Wellness Community’s professional support services offered to prostate cancer patients and their loved ones, including a monthly networking group and a bi-weekly support group. The seminar and support groups are free of charge. Call (805) 379-4777 to RSVP or learn more.

Dr. Princenthal’s seminar will focus on new advances in Prostate MRI, detection and staging. “This new prostate MRI technique, now available in our community, provides critical information to men and their physicians in our outpatient center, so there is no need to drive to a university setting,” says Dr. Princenthal. Dr. Princenthal received his M.D. from Penn State University College of Medicine. He completed his residency in diagnostic radiology at Yale Univeristy School of Medicine and completed a fellowship at the University of California, San Diego. Dr. Princenthal practices with Rolling Oaks Radiology in Thousand Oaks, Westlake Village and Simi Valley.

Conejo Valley resident John Shwope is an advocate of prostate MRI after benefitting from a visit to Dr. Princenthal. “I was unaware that they had this instrument in Thousand Oaks and I immediately set an appointment,” says Shwope. “The scan results and Dr. Princenthal’s detailed diagnosis helped find the proper treatment modality and helped with the accurate administration of the treatment.”

Prostate cancer patients and their loved ones are invited to the monthly Networking Group, held the third Saturday of each month at 10:30 a.m. Prostate cancer patients and survivors are invited to the Support Group which meets on the second and fourth Wednesday of each month at 6:30 p.m. Both groups are led by psychologist Kevin Axelrad, Ph.D and are held at The Wellness Community Valley/Ventura, 530 Hampshire Road, Westlake Village.

For a complete list of TWCVV's free cancer support programs, please visit our Calendar Page.

Cancer Support Organizations Partner to Launch Support Group for Young Adult Cancer Survivors



The Wellness Community Valley/Ventura has partnered with the United Cancer Advocacy Action Network to launch a new support group for young adult cancer survivors on the first and third Monday of each month from 6:30 p.m. until 8:00 p.m. The group is open to men and women ages 18 to 39 and meets at 530 Hampshire Road in Westlake Village. The next group meeting is June 20. The group is free but registration is required. To register or learn more please call (805) 379-4777.

Each year in the United States, an estimated 70,000 young adults are diagnosed with cancer, and about 1 million young adult survivors are already grappling with issues related to the aftermath of the disease and its treatment. Research has found that young adult cancer survivors often lack access to professionally led services geared toward the specific emotional issues they face. Psychological support is an essential element of healing and recovery from cancer.

The Wellness Community Valley/Ventura (TWCVV), a leader in providing support groups to people affected by cancer, partnered with the United Cancer Advocacy Action Network (UCAAN) to extend their quality programs to young adults. UCAAN was founded by Rachel Shur, a leukemia survivor diagnosed and treated in her early thirties. Studies show that patients receiving psychosocial support experience less pain, stress and depression, are more likely to comply with medical treatment, experience fewer recurrences, and, in many cases, are able to enjoy a better quality of life and live longer.

“This group will cover the unique needs of young adult cancer survivors, including dating, taking care of a young family, career concerns, and finding alternative ways to cope with treatment side effects,” says group facilitator Gina Cole, MS, MFT. Cole is a licensed Marriage and Family Therapist and a certified trained facilitator with a private practice in Ventura.


About The Wellness Community Valley/Ventura
Celebrating its 20th Anniversary in 2011, The Wellness Community Valley/Ventura is an independently governed and funded affiliate of the Cancer Support Community, serving more than 3,000 community members affected by cancer each year with programs in the San Fernando Valley and throughout Ventura and Santa Barbara Counties. Programs are offered in English and Spanish. For more information, to volunteer or to make a donation, please visit www.TwcVv.org or call 805-379-4777. Text COMMUNITY to 90999 to donate $10 to cancer support programs. Standard text messaging rates apply. For full terms visit mgive.com/a.

Founded in 1982, the Cancer Support Community, formerly named The Wellness Community, is an international non-profit organization dedicated to providing free support, education and hope to people with cancer and their loved ones. In July 2009, The Wellness Community and Gilda’s Club joined forces to become the Cancer Support Community, one of the largest providers of cancer support worldwide. The combined organization is comprised of nearly 50 local affiliates, 12 affiliates in development and more than 100 satellite locations. By offering professionally led support groups, educational workshops, nutrition and exercise programs, and stress-reduction classes, The Wellness Community and Gilda’s Club continue to provide support, education and hope to all people affected by cancer.


About the United Cancer Advocacy Action Network
United Cancer Advocacy Action Network is a non-profit organization that aids survivors of cancer to become fully self-supporting through education, employment & emotional growth. By providing the tools needed to live life to their fullest potential, improve quality of life, help to gain full-time employment with benefits and/or aiding them to start a business so they will not be dependent on Social Security for long term. Together we can and UCAAN Make a Difference!

Monday, April 25, 2011

Stories of Hope, Words to Inspire

We are pleased to present the honorees for the 20th Anniversary Celebration of Life Gala. Their stories inspire us to continue our mission of providing support, education, and hope to people with cancer and their families.


Celebration of Excellence: Robert D. Hesselgesser, MD

Dr. Robert D. Hesselgesser held the very first fundraiser for The Wellness Community Valley/Ventura, is a charter founding member, and has served on the Professional Advisory Board for many years. Dr. Hesselgesser and his wife, Jane, generously opened their home for a spectacular French impressionistic garden party, the first event ever held to help TWCVV open its doors. Jane Hesselgesser, an international concert pianist, gave a memorable performance at the North Ranch Community Center to raise additional funds.

A graduate of USC and New York Medical College, Dr. Hesselgesser completed his residency in radiation oncology at LA County USC Medical Center and has been Board-certified for more than 35 years. He is a specialist in radioactive implants with high and low dose rate Iridium-192, and has lectured internationally on the topic. He has performed over 250 I-125 prostate implants, one of the largest series done by a single physician. Dr. Hesselgesser practices with North Oaks Radiation Oncology Center, in Thousand Oaks and Westlake Radiation Oncology Center in Westlake Village.

Although he intended to specialize in OB/GYN, a lecture in medical school on the wonders of radiation oncology sparked his interest. Decades later, his passion for his work is stronger than ever. “Giving patients hope and being able to offer something that can benefit them is the most rewarding aspect of my work,” says Dr. Hesselgesser. “Aside from the benefits of radiation oncology, I also really enjoy the science involved. The fact that you need to be an expert on all aspects of the human body forces you to be a real Marcus Welby of cancer care!”

“Dr. Hesselgesser listens to me and allows me to be a full partner in my treatment,” says Kathy Joosten, a ten-year lung cancer survivor. “His explanations of how the treatment works, even down to the cellular level, help me believe in the efficacy of the treatment.”

Dr. Hesselgesser lives in Westlake Village with his wife, Jane, and has “a ton” of hobbies including collecting rare objects from coins to dinosaur bones. Dr. and Mrs. Hesselgesser’s son James is VP of Program Development for an aircraft parts manufacturer. Their son Alex works for the San Diego Police Department and is a 2nd Lieutenant in the Marine Reserves.

Celebration of Hope: Mervyn Kopp

It was May 18, 2006 – Merv Kopp’s birthday. In the past two months he had been diagnosed with leiomyosarcoma, (a rare and aggressive cancer), and had two surgeries in his right maxillary sinus. On a day when he should have been celebrating, he began the first of 33 radiation treatments. Rather than lament his situation, he decided to give himself a goal; he bought a brand new mountain bike. “The bike arrived before treatment ended, and it drove me nuts seeing it in my kitchen every day, but it made me vow to become as strong as possible as soon as possible,” says Merv.

This is how Merv takes on life and inspires everyone around him. He has no time for self-pity, preferring instead to follow Monty Python’s lead and “Always Look On The Bright Side Of Life.”

As a delegate to the inaugural Lance Armstrong Foundation LIVESTRONG Cancer Survivors Summit in October 2006, Merv was inspired to do something to help cancer survivors in his community. As an Honorary Rotarian and past president of the Thousand Oaks Rotary Club, he had spoken locally about the power of a positive attitude, using humor. He decided to produce a stand-up comedy show FUN-draiser for The Wellness Community Valley/Ventura. Five years later, Merv is responsible for three successful Stand Up for Cancer Survivors Comedy FUN-draisers at the Thousand Oaks Civic Arts Plaza, and TWCVV uses the proceeds to produce a monthly Monday Comedy Night, “Laughter IS the best Medicine” for people affected by cancer. More than 1,100 people have been regaled by 34 professional comics, all thanks to Merv’s dedication and nonstop energy.

In early 2009, Merv’s cancer returned. After eight months of chemotherapy Merv once again has No Evidence of Cancer. Through all of this, Merv continues to work diligently to bring laughter to cancer patients, survivors, and family members in our community. “Laughter is the bridge we take to leave the dark side and get to the other side,” says Merv. “Maybe your glass is only one-sixteenth full, but at least it's got something in it. To quote Norman Cousins: ‘Laughter IS the best medicine.’ So, take your medicine!”

Celebration of Life: Norman MacDonald and Leonard Chapman, The Honey-Do Boys

For anyone with a “Honey-Do” list and no “Honey” to help, Norman MacDonald and Leonard Chapman of the Honey-Do Boys are just a phone call away. By donating their handyman skills, the Honey-Do Boys help TWCVV continue its mission of providing support, education and hope to cancer patients and their families without having to take staff time and financial resources to tend to the facility.

Norm and his wife Kathy got involved with TWCVV in 1996 when Kathy was diagnosed with lymphoma. Kathy was passionate about helping others affected by cancer, and spoke at fundraisers and local groups about her experience. She passed away in 2005 after living nine years longer than the doctors predicted. Norm believes Kathy exceeded doctors’ expectations in part because of TWCVV. “They opened her eyes to the fact that she wasn’t alone, and she felt like she could do something to help,” says Norm. “That was her will to live.”

After retiring from 37 years as an aviation mechanic, Norm and his neighbor Len formed the Honey-Do boys in 2003 and continue to donate their handyman skills to TWCVV and Habitat for Humanity. Although Len is retired after 48 years in the home improvement industry, he has never slowed down. “It’s a great satisfaction to do a job, do it right, and do it well,” says Len, who is a cancer survivor.

When TWCVV’s south wall was reconstructed Norm and Len took on one of their largest projects, installing new floors and painting the support group rooms. Lianne Ingalla is one of many participants who enjoyed the transformation. “The changes have been a subtle uplift to our collective spirits,” says Lianne, an interior designer and a breast cancer survivor. “The sleek floors immediately enriched the rooms, and clean paint added to the renewal.”

“The most precious thing we have is our time, and The Wellness Community gave me time with my wife that I would not have had,” says Norm. “It’s a debt I could never repay, but at least I’m getting closer.” We at TWCVV extend our deepest gratitude for the precious time that the Honey-Do Boys have donated to our cause.

Celebration of Philanthropy: Mr. Hugh E. Petersen in memoriam

On behalf of the thousands of people who have found solace within the walls of The Wellness Community Valley/Ventura, we would like to thank Mr. Hugh Petersen for giving us a home. Hugh donated the building that houses TWCVV in 1995, but his remarkable generosity extends far beyond this extraordinary gift. It would be impossible to measure the lives changed for the better by Hugh, especially because he never sought credit for his kindness.

Hugh Petersen was born in 1918 and spent his childhood in Kenilworth, Illinois. He graduated from Princeton University with Honors in Economics and entered the family business in 1940 when his father became ill. By day he ran the J.W. Petersen Coal and Oil Company in Chicago while at night attending Northwestern Law School and later receiving an MBA from the University of Chicago.

Hugh met and married Marjorie Stone in 1968, telling his family it was the best thing he had ever done in his life. After ten years of marriage, they decided to “retire” to Santa Barbara. He liquidated the company in 1978, which had become the largest distributor of coal and fuel oil in the country.

In 1972, he purchased the La Arcada Investment Corporation in Santa Barbara, which included the La Arcada Building and other commercial properties including a bank building in Thousand Oaks. He devoted himself to transforming the La Arcada building and courtyard into a beautiful area for the community to enjoy, filling it with treasures collected and commissioned from around the world. He treated his many tenants like family. It was his delight to donate the building in Thousand Oaks to TWCVV, an organization he believed gave tremendous service, support and hope to those with cancer. Innumerable individuals and students, churches, colleges and universities, Christian organizations and community projects have benefited from his legendary generosity.

Saturday, November 13, 2010

No One Should Face Cancer Alone


"There is no price tag for the support I received from The Wellness Community Valley/Ventura. They gave me hope and inspiration weekly that gave me strength to do all that I had to do to recover and offer hope to others. "
- Liane Olin, TWCVV Participant

During these difficult times, we are called upon to provide more services than ever before. The Wellness Community Valley/Ventura has received a generous challenge grant of $100,000 from the Hugh E. & Marjorie S. Petersen Foundation. The Foundation has challenged TWCVV to raise $100,000 in matching funds by December 31, 2010. Your gift will be matched dollar-for dollar. Support the challenge now!

Click here to make a donation.



Pictured above: Janice & Randy Perez, TWCVV participants

Wednesday, July 28, 2010

Wanted: Five Minutes of Your Time

If you have or had breast cancer, or know someone who has, we need your help in creating a national program of education and support.

The Cancer Support Community, uniting The Wellness Community and Gilda's Clubs, is developing a nationwide educational series called Frankly Speaking About Cancer: Spotlight on Breast Reconstruction - and we need input from women who have or had breast cancer.

This workshop will be presented to thousands of women across the country. The Wellness Community Valley/Ventura has been selected as the first site for this workshop, tentatively scheduled for mid-January, 2011.

If you are a breast cancer survivor, please take 5 minutes to answer these survey questions. Your insight is critical in developing this national program of support and education.

If you know women who are either in treatment or are post treatment for breast cancer, you can help by sending them a link to this blog post.

Thanks for your help - we really appreciate it!

Learn about other topics in the Frankly Speaking About Cancer series at The Cancer Support Community's website.

Wednesday, July 14, 2010

Laughter is the Bridge

“People only talk about cancer in a negative way… stricken, battled, died… but why can’t we focus on the positive… diagnosed, treated, survived! Life is terminal, cancer isn’t.”
-Merv Kopp

On March 14, 2005, at the age of 70, Merv Kopp was diagnosed with Leiomyosarcoma (LMS), an extremely rare form of cancer. From that moment on Kopp would spend much of his time laughing and bringing joy into the lives of others.

Merv, a UCLA graduate and father of two, recalls the first time he realized something was wrong. “I used to ride my bike during my lunch breaks. During one of my rides I discovered I could not breathe out of my right nostril.” After his first trip to an Ear, Nose, and Throat specialist it was revealed that he has a deviated septum. Additional X-rays concluded that Merv had a small mass blocking his nasal passage. The mass was removed on March 9, 2005 and a few days later he received a call saying it was cancerous.

Merv’s passion and zest for life never allowed him to have a moment of self-pity. He recalls his first thoughts as being calls for action, “What do we need to do to take care of this? Who do I have to see?” He underwent wide margin surgery to ensure the removal of all cancerous cells and after 33 doses of radiation he thought his journey with cancer was over.

In early 2010, Merv began to experience shooting pains down his arm and abdominal region. After many tests and trips to the doctors it was revealed that the LMS had in fact returned and the cancer treatment started up once again.

Through all of this Merv has managed to keep a smile on his face and even bring smiles to those around him. After attending the Lance Armstrong Cancer Survivor Summit in 2006, Kopp had an overwhelming sense to give back to the community and to help those with cancer. What better way than to provide hope and smiles to those diagnosed with cancer?

He began producing Stand up for Cancer Survivors, an annual fundraising comedy event for The Wellness Community Valley/Ventura. “I like laughing and having a good time,” he says. “Laughter is the bridge we take to leave the dark side and get to the other side.” (Merv is pictured, left, at the 2009 Stand Up for Cancer Survivors event.) Along with planning the annual comedy night, Merv diligently works on bringing comedians to The Wellness Community once a month for a series called Comedy Night: Laughter IS the Best Medicine. (Wellness Community participants are pictured, right, enjoying a Comedy Night event.)

Merv describes himself as always being the class clown. “I liked the attention when I was younger but now I can use humor in a positive way.” His favorite aspect of Comedy Night is “seeing all the people laughing - that’s when I know the plan has come together.” He continues by saying, “I am so happy to be able to work with the people at The Wellness Community and the organization itself. It’s awesome, the programs and the attitudes of everyone there.” With his contagious smile and enthusiastic spirit it is no wonder he brings joy to all those he meets.

You can see photos from the Comedy Night series on our Facebook page.